The pump has changed my life in so many ways already. It's been a year since I started this journey, I was afraid to do it. The MISINFORMATION or out-of-date Information that I read about it on the Internet. I was reading about the side effects, the POSSIBLE side effects, and I was looking at the message boards. II realize that this procedure has come a long way in THE 20 years or so that it has existed. This was a breeze, a piece of cake. It does not stick it out at all. The photo I had seen on the Internet was of a pump on a baby, and I had thought that is probably what it was (a baby). But I have also seen pictures of the pump by itself, uninstalled. So, I was afraid of how much it would stick out and afraid of it slipping out of the pocket in my body. The doctor told me that he is seen only one case of this, where a man who wore his belt too tight, the doctor also told me, I could always have it removed. I was not told that I would barely even see the pump. I was afraid of the weakness I would feel. And I definitely have a higher mountain to climb since I have either, but it gives me a true baseline to work from interns of the weaknesses in the body. But it is not that much different in terms of the great mountain that I must now climb. Of course, I don't have to climb the mountain. But I want to. I want to try and be all I could be, like I am in the army. ((just kidding). Iam very tired, and the 50 is a different issue for me. I wanted the pump so I could not only manage my spasticity, I wanted to come off of the pills. I can now write what I posted exercise bike, the "Ex N Flex passive exercise bike to my heart's content. So, the first day, I had wrote it for 40 minutes, 20 minutes each way (forwards & backwards). As a result, I was very spastic the next day. And so, I have learned my lesson. BUt it was so nice to be able to (passive) bike again. It had been a few years.
Why the procedure, (and it is a procedure, not surgery, but an operation). Why the procedure has been pushed back was because I was afraid until about November, of last year. I was ready to do it. I needed it very badly. I had pushed it to the limit. But the doctor was moving offices. BAD TIMING! I was told this would push it back to JANUARY. I did not make a lot of noise when they did not call in January. Or February. It was the end of March before I was called. I did not make a lot of noise because I was afraid still. And I figured if I become the nuisance and make a lot of noise they would push it back even further, because they hate me. So I patiently waited, As Beck would say, like an an ashtray for the butt. No, I was waiting patiently and I'll leave it at that. The doctor had moved to the new place along with his nurse and scheduler. Since
the surgery, I mean OPERATION, I get the feeling that they are either feeling bad about pushing me out so far or that they might be araid that I'm going to try and bring a lawsuit upon them? I have been told twice about how disorganized they are since moving to the new surgery center. But, they have been so kind to me. When I had went in for the trial, the doctor said something to me about gratitude. This impressed me and made me feel and know that this doctor really cares about his patients, he cares about people. And I love him. As it turns out, I had a great surgeon. I had a great doctor for my SUPRA pubic operation also. Dr. Walker has done a wonderful job, and I think it does partly due to a procedure in the operation that he developed himself. Both operations have made my life so much better. I would recommend that anyone having spasticity as an issue, to get the pump while they can still walk, if they can. It is wonderful! I don't need to worry about bladder leakage, though I do where a bladder protection pad, I can drink to my hearts content now ! All I have to worry about now, is that I drink enough. I drink quite a bit compared to when I have trained myself to drink to avoid bladder leakage.
Who would've thought that there is so much miss information on the Internet?
There is a lot of miss information out there about the pump. A lot of it is just out of date.
I was put on antibiotics after the procedure, for 10 days. I have a competent doctor, so there is been no problems and it stick out after all… It is really barely noticeable. And I am underweight.
I can lay completely flat now. And for a long time. And I write this, every post, using the voice recognition on the iPad 3, which I use extensively now: I can ZOOM IN to read some websites. Other websites have gone to the "mobile" version… I can't use those websites because I can't zoom in.
"AW, SHUCKS!"
LOL
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